The Hidden Costs Of Being Allergic To Cold [CC]
09
March

By Adem Lewis / in , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , , /


Hello! Being allergic to cold is expensive. [upbeat intro music] Hello! My name’s Max and I have a condition called Cold Urticaria
and it basically means I’m allergic to cold. And because I have a health condition, there
are hidden costs associated with that. Who would have thought it cost money to be allergic
to something? Well it does. If you want to know more about Cold Urticaria and being allergic
to cold, I will leave a playlist up here, you should definitely go and check that out.
Having any chronic health condition has hidden costs. So I’ve decided to make my own little
mini series about the hidden costs of health conditions. First one being the hidden costs
of being allergic to cold. Also going to include things that have actual financial costs and
things that are not so much monetary but have cost me- Where are these little hairs coming
from? Nope. Nope. Go away. Anyway… The first one being central heating bills. I have had
comments on some of my videos telling me to just put a jumper on, and in actual fact my
heating is on quite a lot, so I don’t always need a jumper. As you can imagine, having
a warm house is very helpful when you have Cold Urticaria. If you have a warm house,
the less likely you are to just be allergic to the air around you, you might still have
allergic reactions to leaning on something cold, or going in the fridge, or, I don’t
know if you open a window or something, but having a warm house is key to managing Cold
Urticaria at home. And that obviously comes with a cost. A central heating bill will be
higher. I’m very fortunate to live with housemates and we split the cost of central heating and
it’s on a timer, so if I am cold I just get into bed, but generally they’re quite understanding
or the fact that having a warm house is nice for every body, especially for me, so I stay
alive. Little bit of an exaggeration, probably won’t kill me. Moving on from that, hot water
bills, which is kind of lumped on with the central heating bill because in my house they’re
both gas powered I think. Long hot showers are my best friend. Occasionally a bath but
I generally have reactions to the parts of my body that are not in the bath, even if
they were all in the bath and then I get out of the bath. It’s not so bad in the shower.
The hot water bill will probably be higher if you are also allergic to cold, like me.
Especially if you come in from outside and it’s cold and you warm up by getting in the
shower for an hour… Not the most environmentally friendly but you gotta do what you gotta do.
Next. The gold standard treatment for Cold Urticaria are prescription only medications
(currently in the UK). That means that per item, per month, it costs (currently) £9.00
each. That’s £18 a month possibly, so the medications I’m talking about are Fexofenadine
which is an antihistamine that basically controls all of the skin reactions mostly like hives
or these- the ones in your face- that doesn’t make much sense, but fexofenadine is the gold
standard antihistamine prescribed for Cold Urticaria, and the other medication is a salbutamol
inhaler which not everybody needs but I do because it affects my lungs. More on that
in a point in the future, but that also costs money. I’m very fortunate to be very poor
so I get free prescription medications otherwise I would not be able to afford to manage my
Cold Urticaria with these gold standard treatments. And also if you are on Singulair- or Montelukast,
depending where you are from and what you call your drugs, that will also be- that is
also a prescription only medication, so that is another £9.00 that you have to pay just
to manage your health condition. Another hidden cost that I have actually not yet talked about-
I’m a big advocate for wearing vogmasks to manage your Cold Urticaria. Usually only relevant
if you get facial hives or you get lung involvment like I do, so if I go out in the cold and
breathe cold air I wheeze like a bitch. And wearing a vogmask is the easiest and most
reliable way to prevent that, and it’s more than a bit of a wheeze, it’s pain and it’s
kind of internal itching, it feels horrible, it’s really hard to describe, more of why
I wear a vogmask up here. But those vogmasks need to be replaced. A part of the reason
that I have such a large collection of vogmasks is because I got them cheap off Wish, and
the more you have the less I need to replace them. So if I wore one mask all the time within
a year I would have to replace it, each mask has a lifetime of about a year, but that does
vary according to the brand of mask that you use, why you use it, and how often you use
it, and how often you wash it. Lots of factors and with a big collection like mine, I have
to replace them less. But I have already had to replace two because they just- the material
kind of shrank and it was just not effective anymore. Masks need to be replaced and if
you are using upmarket masks such as a cambridge mask or a vogmask brand vogmask- because they’re
like Henry the Hoover. Not all vacuum cleaners are hoovers, but all hoovers are vacuum cleaners,
that’s kind of what vogmask is. You can just type vogmask and you get many brands including
Vogmask as a brand itself. Confusing I know. But if you use those two brands that I can
think of, there are probably more, they are quite expensive, so I think they are about
£25 or £30, plus shipping, whereas the ones I get off Wish, they are about £1 each, with
about £1 shipping, and they take ages to arrive, but because I only use them for cold
it’s the cheapest way for me to do it. If you have a more sensitive allergy or a particular
allergy or you are trying to filter something out, like an actual substance, I would not
recommend the Wish vogmasks, or if you try them, you know, I warned you. They might not
be as protective as they say on the website. Just an FYI. Another cost of Cold Urticaria
that you might not consider, and a lot of people will consider this a luxury, but it
is not, is public transport costs because I cannot walk that far in the cold. Anything
more than two or three bus stops away is beyond the distance I can go before I start to feel
itchy all over my body, before I start to feel dizzy, before I start passing out, it
is not cute, I cannot walk that far in the cold. And if I didn’t use public transport,
I would be basically limited to my house and the shop up the road. I’ve got places to go
too, so the cost of public transport is definitely a hidden cost of Cold Urticaria, and that
includes buses and taxis. I mostly use buses because I’m not made of money, but occasionally
I will have to get a taxi to somewhere the bus doesn’t go. This also includes car costs
from having to drive anywhere but I don’t have a car, so I can’t tell you how much more
expensive that might be. But it’s there. I have in the past had partners drive me from
my house to the shop up the road so… The next not so much an actual physical monetary
cost, but it has cost me a good deal of my mental health. Largely because being stuck
inside all winter and not able to really go out and socialise that much kind of makes
you a bit lonely and it does not help the depression goblins that really thrive in Winter.
My mental health suffers when it’s colder because I can’t go out and do anything about
it and not that many people pay visits, but I’m very grateful for the people that do,
or the people that drive me to somewhere we can hang out, that also works. another hidden
cost is the cancellation of plans and that can cost you a reputation, if you are well
known for showing up and then suddenly you get Cold Urticaria and you can no longer show
up, sometimes you have to cancel because it’s too cold. Sometimes it can cost you actual
money, so there’s been times where I’ve paid for a ticket to a show but then it’s snowed
and I can’t leave the house, so I’ve had to cancel going to the show that I’ve paid for,
and that;s money I don’t have, and you can’t always sell the ticket on the fay of, it doesn’t
always work. Similarly it’s cost me a social life, again, because I can’t really go out
much in winter and then people get used to me not going and then they get used to not
inviting me, and then I’m just lonely and no social life. Finally it has cost me friends
because either they don’t understand, I think when you stop hanging out with people fr a
long period of time people do generally just drift away and so many people have drifted
away since my Cold Urticaria got to a point where me going outside is not brilliant, and
that I’ve had to actively avoid going outside sometimes, so it has cost me close friendships
because we’re just not as close anymore because I never see them, but I hope that they know
that I’m still there. I’ve tried to make that clear and I post on Facebook about it and
on Instagram but sometimes you just don’t really know. It has cost me some friendships
and some of my sanity. Those are some of the hidden costs of being allergic to cold, the
hidden costs of cold urticaria, there are probably more but some of them I thought of
but it’s just a general cost, like buying hats and scarves and gloves because I lose
them, that’s just a cost of me being clumsy. Don’t forget to like this video, drop a comment
down below if I’ve missed a hidden cost of cold urticaria. Subscribe to my channel if
you haven’t already so you can stay up to date with this hidden cost of series that
I’m doing. Ring that notification bell so you get notified every single time I post
a new video, videos go up every Saturday at 6pm UK time with at least one bonus video
every single month. See ya!


2 thoughts on “The Hidden Costs Of Being Allergic To Cold [CC]

  1. Another hidden cost of cold urticaria – your privacy! Not only in terms of putting yourself out there in both traditional and social media to spread awareness of urticaria (including YouTube, obviously!), but also in terms all the unsolicited public interactions you're forced to have with people who feel they have a right to ask/harass/abuse you about your vogmask/wheelchair/any other aspect of your existence. I'd guess that's actually a pretty big cost you have to pay on practically a daily basis.

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